I saw the specialist at the IU Center of Neurology yesterday. The doctor I was scheduled/saw is the director of the whole program and started this program many many years ago, so I am confident in his diagnosis.
After a thorough exam and going over all the tests I had previously had, he believes that the optic neuritis is a one and done type episode. It’s official name is Clinically Isolated Syndrome. While there is no 100% guarantee that it won’t progress into MS, his experience suggests that I am probably in the clear. He recommended another set of MRI’s in July of 2023 to ensure no new lesions and to take a vitamin D supplement. And to contact if any new symptoms arise.
Optic neuritis can’t take 6-12 months to heal, and while my vision may improve, it also may stay somewhat blurry. The doctor said there isn’t any treatment that is proven to improve the healing process, except the iv steroids that I already had. He had great things to say about my neurologist which is comforting to know she is the best, but I already felt she was.
I am relieved to finally have a diagnosis. It brings peace to my mind that we have some answers and a plan. For those who read this, thank you for your thoughts and prayers.
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